The other day I signed up for CCFA
Partners. CCFA Partners is trying to enroll over 10,000 individuals with
inflammatory bowel disease (IBD) in a survey to look under the issues that IBD
patients face such as symptoms, medication, quality of life, etc. This
information I believe will help researchers understand issues that patients of
IBD face as well as possible ideas as to what makes symptoms worse or better.
The idea of the survey is to survey patients around every couple of months to
see how they are doing. As I write this 9,334 patients have signed up. I hope
more than 10,000 people sign up so researchers can get a good understanding of
what IBD patients face. This is a great way to help IBD patients help each
other!
For more information:
No comments:
Post a Comment